The Parkinson's Appeal for Deep brain Stimulation

NEW

Progress Report - Nov 2007
The latest report on the work of the Unit of Functional Neurosurgery
Download the report ( 82KB PDF) >>

Meeting of Minds - Auction at Christie's
Exceeds all expectations raising nearly £0.5m


HRH Princess Michael of Kent with Tracey Emin

Meeting of Minds Auction - 16 October 2007

In the presence of HRH Princess Michael of Kent raises almost half a million pounds


DAVID GEST donates items from his personal collection for sale by Stanley Gibbons specialist Fraser's Autographs>>

David Gest signed T-shirt from I'm a Celebrity Get Me out of Here!

Signed items from David Gest including Micheal Jackson, Liza Minnelli Posters with T-shirt worn by David Gest in the Jungle
Stanley Gibbons specialist Fraser's Autographs>>

Signed T-Shirt worn by David Gest in the Jungle and Posters signed by Liza Minnelli, Michael Jackson & various artists including Whitney Houston

Basal Ganglia Speech Disorders and Deep Brain Stimulation 1st International Symposium, Institute of Neurology, Queen Square, London. 2 & 3 July 2007
Topics included:
Basal Ganglia and speech disorders; Deep Brain Stimulation overview and post operative management; Speech outcome following deep brain stimulation for Parkinson’s Disease and Dystonia; Measuring Speech-the challenge of movement disorders; Treatment for speech disorders following deep brain stimulation


Progress Report - May 2007
The latest report on the work of the Unit of Functional Neurosurgery
Download the report ( 82KB PDF) >>

International Workshop on Functional Neurosurgery for movement disorders and mental illness - Feb 2007 organised by the Functional Neurosurgery Unit at Queen Square, London was a huge success attracting almost 200 delegates along with eminent speakers from around the world.
Download personal learning from each session (146Kb PDF)>>

Progress Report - Nov 2006
The latest report on the work of the Unit of Functional Neurosurgery
Download the report ( 82KB PDF) >>

9 Nov 2006 - 10 Centre study across Germany, Norway and Austria published in the New England Journal of Medicine concludes that bilateral deep brain stimulation of the globus pallidus is effective in the reduction of dystonia symptoms and disability in people with primary generalized and segmental dystonia.
Download article summary (14kb pdf)>>

23 August 2006 - The National Institute for Health and Clinical Excellence (NICE) issue full guidance to the NHS in England, Wales, Scotland and Northern Ireland on deep brain stimulation for tremor and dystonia (excluding Parkinson's disease)
http://www.nice.org.uk/page.aspx?o=IP_319

Martyn Lewis CBE has generously given his support to the appeal by making a video and radio advert at BT Centre in London to promote the work of the appeal and its new donate by text service which was made possible by a BT Community Champion Award.

Martin Westall with Martyn Lewis promoting the donate by text service Martyn said "I think where there’s hope and potential to help people like Amy, we should all be prepared to do what we can and give what we can.”

Martin Westall with Martyn Lewis promoting the appeal
Listen to the advert here (380Kb WMA) >>
Watch the advert here (1.94Mb WMV) >>

Her Majesty's Ambassador Anthony Brenton 29 June 2006 - presented Amy Westall (UK) and Oksana Zabelina (Russia) awards for courage and raising awareness about Dystonia in the UK and Russia. The Ambassador praised the UK scientists involved with Deep Brain Stimulation and collaboration between the two countries.

Amy Westall receiving award from Her Majesty's Ambassador Anthony Brenton Amy Westall and Oksana Zabelina prepare to address the press conference
Her Majesty's Ambassador Anthony Brenton & Amy

Amy Westall & Oksana Zabelina address press conference

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Progress Report - June 2006
The latest report on the work of the Unit of Functional Neurosurgery
Download the report ( 51KB PDF) >>

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The Sunday Times feature Amy Westall in article about Deep brain Stimulation 5th March 2006 http://www.timesonline.co.uk/article/0,,2087-2070178,00.html

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BBC WORLD SERVICE - Outlook programme talks to three people with Dystonia who have had or considering Deep Brain Stimulation.
Listen to the interview here (5MB WMA) >>

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Fern Britton and Phillip Schofield interview Amy Westall 8th March 2006
This Morning interview Amy Westall about Dystonia and Deep Brain Stimulation Video clip 20MB WMV >>

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SKY News Live interview with Amy Westall
12th March 2006

Iinterview with Amy Westall about Dystonia and Deep Brain Stimulation Video clip 12MB >>

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Deep Brain Stimulation discussion and webcast from the Dana Centre, London
A great opportunity to see again the discussion on the treatment of conditions using Deep Brain Stimulation which took place in the informal surroundings of the Dana Centre, part of the Science Museum, London on the 15th March 2006

Organised by The European Dana Alliance for the Brain and the British Neuroscience Association to celebrate Brain Awareness Week, the evening was chaired by Mary Baker, President of the European Parkinson's Disease Association.

Speakers include two members of the Functional Neurosurgery Unit at the National Institute of Neurology, Queen Square, London:
Professor Marwan Hariz, Edmond J Safra Chair of Functional Neurosurgery
Dr Patricia Limousin, Consultant Neurologist.
Mr Tiipu Aziz, Consultant Neurosurgeon, Radcliffe Infirmary, Oxford
Mike Robins, one of the earliest patients with Parkinson’s Disease to have the operation.

Amy Westall (20) dystonia and Fergus Henderson International Chef with Parkinson's Disease, patients of Professor Hariz.

Webcast archive now available from
here >>

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DVD available of DBS for Dystonia Conference

"Marvellous; Informative; Enjoyable; Excellent; We gained so much; Outstanding; Thank you so much" said delegates from America , Holland , Belgium and across the UK

Attending the UK 's first International Deep Brain Stimulation for Dystonia Conference held at Belvoir Castle on 3 September 2005 organised by four people with Deep Brain Stimulation, family and friends.

You can share in this unique event thanks to the generosity of Medtronic who paid for the professional DVD of the day which brought together patients and contributions from:

Mr Richard Selway, Functional Neurosurgeon, Kings College

Mr Alex Green, Functional Neurosurgeon, Radcliffe Infirmary

Dr Steve Tisch, Clinical Research Fellow*

Ellie Borrell, Movement Disorder Nurse*

Elina Tripolita, Speech Therapist and Lecturer*

Clive Woodard, Medtronic

*Functional Neurosurgery Unit, National Hospital for Neurology and Neurosurgery.

Also Hannah Lund, Susan Baxter, Joy and Amy Westall DBS Patients.

Choices UK a home entertainment chain with a presence on most High streets in the UK have a copy of the DVD at every store for rental.

Details of your nearest branch can be found at
www.choicesvideo.co.uk/default.asp

or by calling 0870 2422 800

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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